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Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Understanding My Daughters Diagnosis

A MyAutismTeam Member asked a question 💭
Warren, MI

so she was just diagnosed with Asperger's syndrome
other persistent mood disorder
frontal lobe and executive functioning deficits
academic difficulties
mild sensory processing deficits and a moderate degree of interference

I am new to all of this and they all seem very intimidating and I don't really understand them her doctor told me to stay away from researching them online because it only adds to my stress levels with the worst possible situations running threw my head im just lost does… read more

February 25, 2017
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A MyAutismTeam Member

Not to make this sound rude but it basically means you have an autism diagnosis and with that some secondary problems associated with it. Mood and sensory disorders are very common for autistic children, and learning disabilities are as well. Most of the time the learning is impacted by the other issues like the mood an sensory problems.

The doctor is right in a way because all to often we go looking for things and don't like what we find. Sometimes what we find isn't the truth either so it is best not to get caught up in it. Getting your child evaluated and then getting them therapy is where you want to start, and if your child is in school you need to contact them and get them evaluated for school services, and an IEP. The earlier you start and the more you can get the better.

One other word of advise would be for you to try to come to terms with what you now know. Your life and your child's life will not be the same as a relative or friends child so it is important that you know this. Take a breath and try to realize the first and most important step is done, you got a DX. Try to take things one at a time and don't feel you have to do everything all at once. People are here to help just ask about anything you need or want to know. People here have been there and done that, and can help far more than the Internet.

February 25, 2017
A MyAutismTeam Member

Getting a lot of information at once can be intimidating but I agree just think my child has Autism. Every child is different. I would look for local Autism organizations, Community Mental Health and ask your specialist any questions about your child's diagnosis. I looked for the best books for IEPs, Autism and Sensory Integration Disorders. Parent Advocate groups are great helping you navigate the educational system and community resources. Make sure your child is both clinically diagnosis and educationally diagnosis. I believe that gives children the most access to resources. I find typing in questions on google and websites like these help so much with questions or concerns.
{myasdf.org, autismkey.com, autism-society.org & autism speaks are also good starting points}.

March 1, 2017
A MyAutismTeam Member

I was more referring to looking into what the diagnosis means and how it affects the child and not actually looking for resources sorry if I was misunderstood. I was trying to point to the fact that when someone is sick they go looking for medical information and it just gets crazy.

February 26, 2017

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