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How Do I Explain To My Older Daughters Why My Son With Aspergers Who Is 23 Years Old, Still Lives At Home With Us?

A MyAutismTeam Member asked a question 💭
Columbus, OH

My youngest son with Aspergers, 23, still lives at home with us. My older daughters who are married and live on their own do not understand why we don't shove him out of the nest already. He is high functioning but lacks Executive and Cognitive functioning skills. So to my daughters and the outside world he looks perfectly normal.

He won't groom take his medication or eat without prompting. If you ask him to do something it has to be written out step-by-step. There are no group homes in our… read more

May 9, 2014
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A MyAutismTeam Member

What I suggest is to give his siblings some web sites and tell them to study up on their brother. They must be more supportive to you and their brother.They must understand there not a cure but there is such a thing as getting different ways of coping with his disabilites with the family help. I have learned a lot with my grandsons ASD. I even realized that there are older family members that had ASD and they just appeared as being excentric.They have to get on their computer and reflect on what was happening in their childhood, and it will all connect for them. You are doing the right thing just being here.

May 13, 2014
A MyAutismTeam Member

My daughters are 24 and 16, and the oldest has similar behaviors, but is getting better at self-care and advocacy. What does your son say to his sisters when they criticize and give their unwanted opinions? Does he want to change what he can? Do your daughters really understand the behaviors inherent with Asperger's? Do they want to? I don't need answers to these rhetorical questions, but your daughters are grown-up, married and have their own lives, they need to focus on their own families. You would think the most support in raising our ASD children would come from our own families, but sadly, it's rarely the case. You are doing what you need to for your son. There really is no timeline. Has your son worked with a vocational councilor, is there an Autism services office in your state? They may be able to guide your son to some services, or recommend help. Fifteen years ago,when my daughter was diagnosed, I looked up information online to find resources in my state. Just being on this site helps me to feel connected to others that "get" what I'm going through and offer support without criticism.

May 13, 2014
A MyAutismTeam Member

I have the same issue. I gave my older daughter material on aspergers and and tried to explain a bit on why she feels so strongly about her brother. She wants him to be typical, she wanted a typical sibling relationship, his behavior embarrasses her, she doesn't want to end up supporting him etc. Overtime her attitude changed - she still could be more supportive but at least the criticism that destroys his self esteem has ebbed.

October 1, 2014
A MyAutismTeam Member

First I agree with GmaNeana, your older daughter's need some resources to read, and maybe they can begin to understand that Asperger's is on the autism scale. They are probably guestioning why little brother has been treated differently. This could come across as unfair to them. Do try to find some kind of Disability network in your area, and some resources of your own. I'm still wondering myself what will happen to my adult child with Asperger's Syndrom if something should happen to my husband and me. I wouldn't want to burden my two daughters. We need some kind of safety net for him so he dosen't end up on the street. I don't have all the answers, just hang in there and don't give up. Your child might just surprise you though, I didn't think that my son could drive, because he is so easily distracte, but he went through a specialty training program and he is driving now.

May 29, 2014
A MyAutismTeam Member

Most my friends with aspbgers went to reg school an follow a typical leavel of living in there own an such but what I notice that some of my aspie friends are clues on is hygiene an dressing apportie for the weather .i was not high functioning. Till my 20 s an have been aging more skills since but I'm still not as high f as my aspie friends that the diff between autism an as I'm hfa now but wasn't till an adult an only been living on my own with lots of help for a few years sn I'm in my40 s now but still need to be help either stuff idont understand . But becuse the way my parents were with me growing up I have beter skills then some aspie people. I was taught an had lot of therhys an stuff but even some as kids struggle. So maybe he needs social skills of life skills therhy like ot an stuff to help him move along

May 24, 2014

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