Been to several specialists now and have tried many suggestions. The best diagnosis we got was from the allergist and labeled it "cholinergic urticaria". No cure, though. He has gotten better now that he's 17. It's still an issue that we got better at coping with. He very rarely gets the rash anymore but still gets hot. The only real solution for us has been carrying spray water bottles wherever he goes and trying to avoid hot situations. We had a little success with cooling towels. We use an umbrella and always look for the shadiest spot to avoid direct sunlight. Hopefully, it will continue to "fade" as he ages.

Ask his doctor about mastocytosis. Its very rare so you may need a dermatologist...my son has it and heat and friction cause hives like you described...my be a shot in the dark but you never know. Also could be a food allergy.

Thanks for your quick response, I've been searching the Internet for info for 3 weeks and no real-life answers. :-D

My son and I talked more last night and he likes yl peppermint oil, which calms him and it's bonus is "cooling sensation properties." (Kinda like your spray bottle is doing). So I'm going to give him a mini roller- for his pocket to put on when in need. We also downloaded a meditation app. to learn how to calm and relax his mind when the rash/hives start.
Good to know you found a second opinion that, like what i read, no cure, just steroids, and we cannot choose that. Coping is the best skill.
Thanks again friend @A MyAutismTeam Member this is a blessing to know!

Mentioned Users

A MyAutis...

I am having this issue with my 15 yo son since December. What did you do to help, stop the hive outbreaks? I am assuming this has to do with my son's nervous system and not allergies, bc it happens so often now.

The first thing to check is always the soap that you use for your clothes. Teens and pre-teens can develop allergies to laundry detergent. The cream would have stopped that, though.

It sounds like your doctor suspects a histamine reaction to exercise, which is also a pretty common problem. Try taking Benadryl about a half hour before exercise and see if it helps. If it makes a difference, even a small one, then you might be on the right track.

Histamines create autoimmune responses just like an allergic reaction to pollen or dust. A histamine reaction to exercise will cause rashes, itching, and other allergic symptoms. Most of the time, the rashes appear on the chest and legs, but they can appear pretty much anywhere. (Hands and feet are rare, but possible).

Sometimes exercise also triggers food allergies or medication reactions (particularly ADHD medicines) to cause the problem. It can be hard to spot because the medicine itself does not seem to cause a problem unless coupled with exercise. This is a problem that I have with pain medication, which I fortunately have not needed for a while.