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Are Any Other Families Discouraged By The Amount Of Wait Time To Initially See A Psychiatrist Or Specialist?

A MyAutismTeam Member asked a question 💭
St. Louis, MO

We live in St. Louis, MO. My son has a diagnosis of autism and recently was diagnosed with ADD as well. We are having a lot of problems with behavior consisting of aggression towards others, self injury, yelling, refusal, etc. After butting heads with the IEP team at his school they had him evaluated by the SSD psychiatrist. He recommended we take him to a psychiatrist who could help with medical intervention as well as monitor the ongoing treatment plan once implemented. After calling multiple… read more

March 19, 2014
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A MyAutismTeam Member

Yes, a few months ago one of my sons anxiety was getting out of control and we really needed a psychiatrist to help with meds since I felt like it was getting to the point where it was too complicated for just his pediatrician. I'm in the Kansas City area and I had a hard enough time finding a psych who took my insurance AND sees children. My insurance company listed ages as "Adult" and "Children and Adololescents" so I called probably a dozen offices that my insurance company listed and found out that see people 16 and up so they were listed as taking "adolescents" but since it's all lumped together by my ins company, I had no way to know. Crazy frustrating.
Eventually I found 4 people who see 6 year olds, two weren't accepting new patients, one had a three month wait and one was a psych nurse practitioner. I chose the NP but now I'm seeing why she was less busy. She isn't responsive at all when there are problems. Now we are on the waiting list for our one other choice.
It's terrible that quality mental health care is so hard to get. I keep thinking "No wonder people with mental illness don't get care. I can barely manage it for my son and I don't have depression/mania/anxiety/whatever to make it more difficult."

March 21, 2014
A MyAutismTeam Member

this is always the way things are unfortunately. there is always a wait but in the end all of the documentation you are going to get will help prove your case when the schools questions things because they do not want to pay for something. They count on you giving up because they are well aware of the wait times. We did every test and did every evaluation they asked for and even though it was all stall tactics in the end we used everything against them.

Do not give up because while the waits are long you will get treatments as well that will help your child. Aggression is tough trust me I know, and sometimes meds are the answer along with therapy. You want to make sure you are getting the care from the best doctors you can find, and the wait list sometimes means they are good so they are busy. If you can get in really quick it might be a sign something is wrong.

March 19, 2014
A MyAutismTeam Member

My son is two he Was diagnosed at 22 months. We had a two month wait then a two months for the process to be complete. Good luck!!!!

March 23, 2014
A MyAutismTeam Member

I know how you feel. Wait lists meant my son wasnt diagnosed until he was 12! So many missed years of appropriate treatments

March 21, 2014
A MyAutismTeam Member

May, I feel you. It's sad and discouraging, I now know why some people just give up. They make it so difficult to get help. I have found that since the Affordable Care Act went into effect, I have even more problems with my insurance and providers. We are waiting the two months to see this psychiatrist, I'm hoping that it will be worth the wait and he can help with my son's aggression/behaviors and his ADD. Although, it makes me wonder how quickly you can get in if you need to address an emergency situation or need to change meds, etc. I try to keep a positive attitude but they make it very difficult. Most of these offices aren't very compassionate or understanding either. It's like, don't they understand these are parents who are trying to help their children not just be an inconvenience to their office.

March 21, 2014

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