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Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Gluten Free

A MyAutismTeam Member asked a question 💭
Murfreesboro, TN

I've read that a lot of parents have experienced wonders by taking their autistic children off gluten-- but is it necessary? Milo is high functioning and I hadn't noticed a huge difference in behavior when he was off gluten earlier in the year. Are all autistic children affected or is it only certain children? Should I try gluten free again?

November 8, 2013
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A MyAutismTeam Member

I think this is one of those times to bring up that all ASD children are different so what works for one may not work for another. I know people stand by these treatments but the fact is that if the child does not have any issues with gluten or Casein then switching them to the diet is not going to do much, the same can be said for vitamins, if the child does not have low vitamin levels the extra vitamins are not going to do anything either.

I know people grasp to try to find things that will help their child but sometimes it is a waste of time or money. Have the child tested and if something comes up address that issue

November 9, 2013
A MyAutismTeam Member

We went with testing to finding out and confirm what we were seeing. Although our son had very high IgG to both casein and gluten which can suggest hyper immune response and intolerance, the peptides test was positive for casein only and negative for gluten. This confirmed what we saw - huge and immediate changes from removing casein (and soya since peptides are similar) but none from gluten. I do believe gluten free would have helped as well given high IgG but we didn't try that long enough and didn't see any changes in the short time that we did.

November 9, 2013
A MyAutismTeam Member

How long did you have him GF? It takes up to 6 months to get it out of one's system. Additionally, you need to remove casein (dairy protein) and soy because the chemical structures are similar enough to gluten to cause cross-reactions. So if you did not do GFCFSF for at least 6 months, I think you need to try it again. That said, my DD had a dramatic physical response to GFCFSF (she went from wearing a size 18 mos to a 4T within 5 months) but it didn't seem to make a difference in terms of her ASD symptoms.

November 9, 2013
A MyAutismTeam Member

It's certain children. There are a lot of different body systems that gluten can effect (inflamation, stomach/intestine irritation, irritability). Some kids/people respond to gluten free or dairy free or dye free and others don't. I tell people it is worth a try (you must be VERY consistent for at least 2 weeks, a month is reccommended) if no change, then don't worry about it. Enzymes also help some, not others. Every person is different.

November 9, 2013
A MyAutismTeam Member

My son with ASD has celiac so we had no choice but to go gluten free. We have not seen a difference in behaviors or the like except now he doesn't say his tummy hurts all the time we have been on this diet for almost 3 years out of medical necessity his height is that of an 8 year old he'll be 12 in feb we hope he will start to grow soon it's an expensive diet and takes a lot of commitment and because I've seen no change at all in autistic behaviors I wouldn't suggest it unless your child has celiac or gi probs with celiac my son can't have gluten dairy or to many processed foods our food bills have tripled but making food yourself saves some money that is if you can find all the diff flours and starches needed winco sells slot of them in bulk

November 14, 2013

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