It's been 9 months since I've been on MATeam. Just an update: our daughter spent 5 1/2 months at Pasadena Villa in Seviervill, TN after a 6 week stay at the Mennigar Clinic, TX for evaluation for psychiatric treatment but it did not include an eating disorder program. In less than a year she had gone from an 98lbs with an eating disorder to 170lbs with an eating disorder fueled by the psych meds they put her on. She has been back home for 5 months. I have spent the last 9 months since posting on this site researching my daughter's sudden and shocking slide into whatever it is she has and have found out all may not be as it seems; I FINALLY found an MD that specializes in ASDs and auto-immune disorders who "thinks outside the box" of mainstream medicine while still adhering to it's basic principles. He is THE FIRST one to test her for things that might be causing her neuropsychiatric problems from an immune reaction perspective. The first thing he found was that her CD8-/CD57+NK Lymphocytes are being destroyed. The normal median level is 200. Our daughter's is 18. He suspects she has some kind of auto-immune type encephalitic disease that's causing her to exhibit neuropsychiatric symptoms and regression of autism. He is testing her for Myalgic Encephalomylitis, Lyme disease (PAN/PANDAS), Nagalese, T&B Lymphocyte profile, various spirochaete infections, just to name a few. In light of this astounding development, we've sent her medical records off to NYU to Dr. Najjarr to be evaluated for anti-NMDAR Encephalitis. A very interesting discovery I made in my research into PANS (any contagion, not just streptococcus) is that the first two major symptoms to develop are OCD and anorexia, in that order. That's exactly what our daughter first developed.

Thank you so very much. I will look into it.

mercy girl: I did not realize this was so involved for you. Yes, it probably would have helped you back then. I wish I could be of more help. BartEwing seems to really know his stuff. Just so all of you know, I wish I knew about all of you years ago too!

How wonderful!!! I have heard of Rogers Memorial! How old is your son? There are MANY hospitals willing to take children under 17yrs.old. My proplem has been finding ADULT programs. She's 23 and the hospitals I've looked into say she's too old. TOO OLD?!!

I will call them this week to find out! Thank you SO much!!

Try the Institute of Living in Hartford CT